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My blog posts tend to talk about chronic pain in general, rather than specifically be about the type of pain that I have. My pain can only be described as coccydynia pain as I feel my pain where my coccyx was, and I am in pain when I sit down. It also hurts when I move from a sitting to a standing position. I don’t have a diagnosis for my pain, and I had my coccyx removed in 2012 but that didn’t make things better. These days, I don’t focus on what is causing my pain, I focus on pain management and the things I can do every day to make things better. In this post I talk about 5 ways to cope with coccyx pain.
Use a coccyx cut-out cushion
I’m the first one to admit that I’m too embarrassed to use my cushion the majority of the time when out in public, but I always use it in the car and at home. I literally could not cope without it.
In total I own 4 coccyx cut-out cushions – I have one in my house, one in each of our cars, and one at my mum and dad’s. It saves me having to remember to take it with me and keep moving it about. It also makes it less of a big deal too; just leaving the cushion where it is just makes me feel a little bit more normal.
I’ve probably tried every coccyx cut-out cushion there is, but the only one that really helps is the Putnams version. It’s not 100% perfect by any means, but it does mean I can sit for longer before the pain kicks in. Once it’s kicked in, then nothing helps – except trying to sit awkwardly but that then causes my neck and upper back pain.
I like this cushion because of it’s design, and it doesn’t have a big obvious cut-out section, so is probably the least embarrassing type.
Be open and honest with those around you so they understand
This is hard. I struggled with this for the first few years of my pain. I always hid it, said ‘no’ to stuff, and my anxiety took over. I still don’t like to shout it from the roof tops, but I am more honest with my friends and family about my pain and this helps them understand, and it makes me feel more understood. I still get embarrassed when people make a fuss, but I know it’s only because they care and don’t want me to be in pain.
Find things to do that involve walking and lying down
One good thing about my sitting pain is that I now love to go for a walk. I find it so therapeutic and it really helps my overall health and wellbeing. And it means I am doing something and not in pain. I get the odd painful twang when I walk, but this doesn’t happen a lot.
I also try and do stuff lying down, like watching Netflix, films, TV or reading so I am managing my pain as best I can. The only downside of this is that I soon fall asleep, but as always I just listen to what my body needs, and if a 10 minute snooze is what I need, then I’ll just do it.
Learn more about chronic pain
This was the turning point for me. The more I learnt about chronic pain the more I understood it and it helped me accept how things are for me. I don’t have any answers for my pain; I literally have no idea what is causing it, and this is hard to accept. But understanding how chronic pain can affect us, and why it’s important to still do the stuff we enjoy despite having chronic pain, literally turned my life around.
This is crucial. Do not sit there and dwell and try and change what you cannot change. Keep your mind busy by distracting yourself. Read, do puzzles, start crafting, get out in nature, learn to be more mindful, do anything that will help you stop thinking about your pain.
Do you suffer from coccyx pain or coccydynia?
What do you do to cope with your pain?
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