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I came across this Link Up Party by Sheryl from A Chronic Voice on Twitter. I took part in the June Link Up Party and thoroughly enjoyed this creative way of writing. The words for July were more challenging but still gave me a different perspective to my normal blog writing thoughts.
Sheryl shares some amazing stories on her blog, and is a great support for other bloggers and writers who have a chronic illness and/or chronic pain.
I’ve decided to take part in the July Link Up Party, and use the prompts in the below image to help give more of an insight into my life with chronic pain.
If you have a chronic illness or chronic pain why don’t you take part too?
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I need to start adding relaxation and chill out time in to my day. At the moment, I’m either working, blogging, walking my dogs, cooking, or doing chores. I need to get back to having some time for complete relaxation. This might be doing some reading, walking to clear my head, or absolutely nothing and focussing on the now. I’ve been trying this on and off for the last 6 years (ever since I did a mindfulness for health course at my local pain management clinic) but I can never fully get in to it as my mind just wanders off in all directions; I find it frustrating; I need to practice it more I think.
At the moment I’ve got a lot on (like most people, I guess). I need to be careful that I’m not spreading myself too thin and make sure that I am making progress in everything I do, and not doing things half-heartedly. Whether that’s getting my chores done when I say I’m going to; getting my blog post written on time; or simply taking the rest I need to manage my pain. I find when I am focused on just the one thing, and not worrying about other stuff whilst doing something else, or even trying to do more than one thing at once, then I’m more likely to get the job done. I also feel a better sense of achievement and that I’ve done the task the best I can.
Over time I have learned to accept my pain and I’ve mentioned in several of my previous blog posts, that these days I cope better than ever. For me, it is all about mindset; changing the way we think about things can really affect us physically and emotionally. There are some negative impacts of my pain that I still struggle with. One of them is how I cope with things out of my control. Those closest to me often hear me ranting about something that upsets me, frustrates, me or just simply drives me mad. I guess it’s my way of letting off steam, and attempting to feel in control. We have these really annoying motorbikes and cars that drive by our house; they rev up and speed by and it really annoys me. I can’t control them, so I have a good rant instead. It doesn’t change anything, but it makes me feel a little better. I should really just learn to let go more than anything instead.
My close friends and family know I’m in pain everyday. The level of pain varies depending on what I’ve been doing, how much I’ve enjoyed what I’ve been doing, and how well I’ve coped mentally. I’m getting better at hiding my pain, as I know how draining it can be for other people to see me struggling. And to constantly talk about how much pain you’re in comes across very negative. One way I’m protecting those close to me is by not talking about my pain unless I really have to, or unless someone asks about it. I don’t agree with hiding it all together – I wrote a blog post last year about why it’s good to talk about chronic pain – people need to understand and it’s an important part of being yourself and accepting your pain. But it’s important that we don’t make it the centre of all conversations.
I need to start dividing my blogging work in to ‘must-dos’ and ‘development’. I’m so keen to learn and improve my knowledge and understanding of blogging, but now I publish 3 posts a week, I need to make time to stick to my schedule and get the important stuff done too. I must remember, progress not perfection, so I don’t pressure myself too much and trigger my pain through added stress. So setting daily work times and tasks will help with this.
If you’re a blogger, I’d be interested to know how you manage your days and time to get everything done?
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